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Organizations Designed for Families of Children with Disabilities

Web Resources

Updated August 1, 2007

The following links may be of interest as you search the world wide web for information on inclusive child care and other related topics. Many of the sites listed below are good starting points for additional links. The descriptions come from the sites themselves and are not offered with any official Map to Inclusive Child Care or WestEd endorsement.*
 
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Beach Center on Disability

The Beach Center on Disability consists of a rehabilitation research and training center on policies and families, funded by the National Institute on Disability and Rehabilitation Research, U. S. Department of Education; doctoral training programs and research initiatives funded by the Office of Special Education, U.S. Department of Education; and a research center on the ethical, legal, and social implications of the Human Genome Project, funded by the National Human Genome Project Institute, National Institutes of Health.

The Bubel/Aiken Foundation

The Bubel/Aiken Foundation provides services and financial assistance to facilitate fully the integration of children with disabilities into the life environment of those without and works to create awareness about the diversity of individuals with disabilities and the possibilities inclusion can bring.

California Childcare Health Program

The mission of the California Childcare Health Program is to improve the quality of child care by initiating and strengthening linkages between the health, safety and child care communities and the families they serve. Established in 1987, the California Childcare Health Program is a community-based program of the University of California, San Francisco (UCSF) School of Nursing, Department of Family Health Care Nursing. Our multidisciplinary team staffs our toll-free Child Care Healthline, trains professionals on health and safety issues related to early care and education settings, and conducts research. We produce a wealth of materials on health and safety in early care and education settings for professionals and families.

Child Care Aware

Child Care Aware is a nonprofit initiative committed to helping parents find the best information on locating quality child care and child care resources in their community. It does this by raising visibility for local child care resource and referral agencies nationwide, and by connecting parents with the local agencies best equipped to serve their needs. The site has links to Child Care Resource and Referral organizations (CCR&Rs), local experts on child care that provide parents with many services, including referrals to local child care providers.

Children’s Disabilities Information

This is a parent-operated website geared to empowering parents of children with special needs. Numerous articles and resources are available.

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Families and Advocates Partnership for Education (FAPE)

The Families and Advocates Partnership for Education (FAPE) project is a partnership that aims to improve the education outcomes for children with disabilities. It links families, advocates and self-advocates to information about the Individuals with Disabilities Education Act (IDEA). The project is designed to address the information needs of the 6 million families throughout the country whose children with disabilities receive special education services.

Family Resource Center Network of California

In California, family resource centers are part of the Early Start Program. Staffed by families of children with special needs, family resource centers offer parent-to-parent support and help parents, families, and children locate and use needed services. They offer support services and resources in many languages, which may include newsletters, resource libraries, websites, parent-to-parent groups, sibling support groups, warmlines, and information and referral for parents and professionals. The FRCNCA is a coalition of California's 47 Family Resource Centers organized into nine regions.

Family Village

This website offers library articles on specific disabilities and general disability topics. It includes a shopping area directing you to vendors selling products for individuals with disabilities. Family Village also connects families with other families through e-mail so they can share experiences and information. Family Village’s website has many resources for disabilities.

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Kids Included Together (KIT)

KIT stands for Kids Included Together, a registered 501(c)(3) non-profit organization that was founded in San Diego, California in 1997. The mission of Kids Included Together is to support recreational, child development, and youth development programs that include children with and without disabilities. KIT's goals are to enrich the lives of all who participate and to increase understanding and acceptance of disabilities as a natural part of life. We invite you to explore our site and learn more about our work in San Diego County and across the nation.

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M.U.M.S. National Parent to Parent

M.U.M.S. helps parents of children with rare conditions connect with other parents in similar situations. Parents can complete the application form, mail it, and be matched to another family.

National Father's Network

The National Father's Network provides resources and support for fathers of children with disabilities. It has wonderful articles by fathers, many of them in Spanish. The organization also produces written and video resources for fathers. The website is an excellent source of links for fathers, disabilities, and families.

National Parent Information Network (NPIN)

NPIN provides information to parents and to those working with parents. It includes articles on early childhood and disability topics. In AskERIC, e-mail questions on child development, child care and parenting are answered.

Nurturing Our Spirited Children

This website is a resource for parents raising spirited, high-need, strong-willed, active alert or difficult children.

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Parents Helping Parents (PHP)

Parents Helping Parents is a parent organization that has a wealth of information and resources on disabilities. The website includes a library of books and videos that can be borrowed.

Schwab Learning

Schwab Learning is an operating program of the Charles and Helen Schwab Foundation, a private, nonprofit foundation that funds programs in learning disabilities and human services. Schwab Learning provides free information, resources, publications and support to parents of children who struggle with learning and to kids themselves through two websites and Outreach and Community Services. Schwab's Learning Outreach and Community Services further supports the needs of kids and families through educational workshops, seminars, presentations, exhibits, and special projects.

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Technical Alliance for Parent Centers

Parent centers are located in each state and provide training and information to parents of infants, toddlers, children, and youth with disabilities and to professionals who work with children. The parent centers work to improve educational outcomes for children and youth with all disabilities (emotional, learning, mental, and physical). There are ten parent centers in California. The parent centers are supported by the Technical Alliance for Parent Centers through its national center and six regional centers.

Through the Looking Glass

Through the Looking Glass (TLG) is a nationally recognized center that has pioneered research, training, and services for families in which a child, parent or grandparent has a disability or medical issue. TLG is a disability community based nonprofit organization, which emerged from the independent living movement, and was founded in 1982 in Berkeley, California. TLG provides home-based services in Alameda and Contra Costa Counties.

Travel Tips and Suggestions

The website contains information about vacation travel with children with special needs, including articles, books, Internet links, and other resources. Information, which is included on the United Cerebral Palsy website, was gathered by the Family Center on Technology and Disability.

Vietnamese Parents of Disabled Children Association, Inc.

Vietnamese Parents With Disabled Children Association, Inc. (VPDCA) is committed to developing a volunteer organization that can continue providing assistance to Vietnamese parents of children with disabilities.

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Wrightslaw

Parents, advocates, educators, and attorneys come to Wrightslaw for accurate, up-to-date information about special education law and advocacy for children with disabilities. The website contains articles, cases, newsletters, and resources about dozens of topics in the Advocacy Libraries and Law Libraries.

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* Map to Inclusive Child Care and WestEd do NOT endorse or assume any responsibility for information found on these sites. The following links are provided as a source of information and resources. Please e-mail us information about other sites that will add depth and knowledge to these listings.